Information and Resources - Down Syndrome

Provided by Canadian Down Syndrome Society

Provides resources, information, and connections for people with Down syndrome and those who support them.
The Canadian Down Syndrome Society offers a collection of resources and information organized by life stages, health topics, and common inquiries about Down syndrome. They also have various resource booklets which offered tailored information for educators, new parents and more.

CDSS Provides:
  • A Resource Hub supporting all aspects of living with Down syndrome.
  • Major life-stage resources available in digital format in English and in French.
  • An e-newsletter, which keeps the public, members, and donors up to date on what’s new at CDSS and in the community and celebrates stories from around the world.
  • Advocacy efforts with Federal, Provincial and Territorial Governments on issues affecting the lives of Canadians with Down syndrome.
  • Access to a network of Down syndrome groups in Canada.
  • Person-centered support and connections to resources, services and information for the Down syndrome community.
  • Ongoing learning opportunities through information webinars facilitated by community subject matter experts.
  • 3.21 Magazine, a quarterly magazine for and about the Down syndrome community in Canada – it includes stories about advocacy, advice from professionals, the latest news, and important dates about upcoming events and activities.
  • Fundraising campaigns to help fund impactful community resources and projects.

Toll Free: 1-800-883-5608

Public email: info@cdss.ca

Website: https://cdss.ca

Service is available in English and French.

Cost: No cost

Availability

Service area: Province-wide + show cities

Service area cities: 100 Mile House, Abbotsford, Agassiz, Aldergrove, Alert Bay, Alexis Creek, Anahim Lake, Anmore, Armstrong, Ashcroft, Atlin, Bamfield, Banff, Barriere, Bella Bella, Bella Coola, Black Creek, Blue River, Boston Bar, Bowen Island, Brentwood Bay, Burnaby, Burns Lake, Cache Creek, Calgary, Campbell River, Canmore, Castlegar, Cathedral Grove, Cawston, Chase, Chemainus, Cherryville, Chetwynd, Chilliwack, Christina Lake, Clearwater, Clinton, Cobble Hill, Comox, Coombs, Coquitlam, Cortes Island, Courtenay, Cranbrook, Crawford Bay, Creston, Cumberland, Daajing Giids (Queen Charlotte City), Dawson Creek, Dease Lake, Deep Bay, Delta, Denman Island, Duncan, Edgewood, Elkford, Enderby, Fanny Bay, Fernie, Fort Langley, Fort Nelson, Fort St. James, Fort St. John, Fraser Lake, Fruitvale, Gabriola Island, Galiano Island, Gibsons, Gitlaxt'aamiks (New Aiyansh), Golden, Gold River, Grand Forks, Granisle, Greenwood, Hanceville, Harrison Mills, Hazelton, Hope, Hornby Island, Horne Lake, Houston, Hudson's Hope, Invermere, Kamloops, Kaslo, Kelowna, Keremeos, Kimberley, Kitimat, Kyuquot, Ladner, Ladysmith, Lake Country, Lake Cowichan, Langford, Langley, Lantzville, Lethbridge, Lillooet, Lions Bay, Logan Lake, Long Beach, Lumby, Lytton, Mackenzie, Maple Ridge, Masset, Mayne Island, McBride, Merritt, Merville, Midway, Mill Bay, Mission, Nakusp, Nanaimo, Nanoose Bay, Nelson, New Denver, New Westminster, Nitinaht, North Delta, North Saanich, North Vancouver, Okanagan Falls, Oliver, Osoyoos, Oyama, Parksville, Peachland, Pemberton, Pender Harbour, Pender Island, Penelakut Island, Penticton, Pitt Meadows, Port Alberni, Port Alice, Port Coquitlam, Port Hardy, Port McNeill, Port Moody, Powell River, Prince George, Prince Rupert, Princeton, Quadra Island, Qualicum Beach, Quathiaski Cove, Quesnel, Revelstoke, Richmond, Riske Creek, Rock Creek, Rossland, Saanich, Saanichton, Salmo, Salmon Arm, Salt Spring Island, Sardis, Saturna Island, Sayward, Scotch Creek, Sechelt, Shawnigan Lake, Sicamous, Sidney, Skidegate, Slocan, Smithers, Sointula, Sooke, Sorrento, South Surrey, Sparwood, Spences Bridge, Squamish, Stewart, Summerland, Sun Peaks, Surrey, Tahsis, Tatla Lake, Telkwa, Terrace, Tofino, Trail, Tsawwassen, Tumbler Ridge, Ucluelet, Valemount, Vancouver, Vanderhoof, Vernon, Victoria, West Kelowna, West Vancouver, Whistler, White Rock, Williams Lake, Winlaw, Witset, and Yale

Service Types Provided
Caregiver Support
Disability Services
Family / Parenting
Ways to Access
  • Provided online: email / video / on-line

The listing of this service in Pathways is not a recommendation or endorsement by Pathways.

Pathways does not provide medical advice. If you have an emergency please call 9-1-1. If you require assistance navigating services please call 8-1-1.

For general inquiries or for assistance, please email us:

community-services@pathwaysbc.ca

If you are requesting clinical access to medical Pathways, please provide the following information via the email above:

  1. First Name
  2. Last Name
  3. Email
  4. In which city/town do you work?
  5. What is your role? E.g. Family Physician, Office Staff, Medical Resident
  6. Employer Name (for office staff)
  7. Office Phone

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